Total as at November 14th, 2019.
Thanks to EVERYONE who
We are VERY grateful!
No, the men in white coats were not trying to take us away at long last...
We were fortunate enough to visit the mesothelioma research team at St Bart's Cancer Institute on Friday.
It was a wonderful visit and we learnt about new discoveries and drugs being developed in the hope of either curing or managing mesothelioma in the future.
Thanks to the team for all the pioneering work they do under the direction of Peter Slozarek. Very kind of you to have us and most informative. Feel very motivated to keep up all our fundraising for much-needed research!
Total Merchandise -Totally Amazing!
Total Merchandise have donated the tote bags and pens for FREE for our ball!
We are absolutely thrilled with them and almost don't want to give them all away to ball attendees on the 4th October!
Pierre Cardin pens.
Thanks to all the team at Total Merchandise. You have been the loveliest team to deal with, and the bags and pens are wonderful.
Please, please can you share with those who have mesothelioma..?
We’re doing a film for the Erase Meso ball.. just a 5 minute short, but I need help from those who have been diagnosed with mesothelioma.
The aim of the film is to change perceptions/educate viewers on what mesothelioma is..
We aim to let viewers know that meso could affect them today and is no longer “an old white man’s disease”, but affects all colours and young women/teens too.
Our wonderful friend and filmmaker (Dan) is making a short film featuring meso-warriors simply saying their name, and that they have mesothelioma.
We will feature 10 people with meso interspersed with facts about meso that ball attendees/viewers will probably not know.. (eg The UK has the highest incidence of mesothelioma in the WORLD)
The film will end with a montage of mesowarriors’ videos.
We want viewers to understand that this is no longer a rare or “old man’s disease” and that meso is not going away.. incidences of meso are rising..
If you have mesothelioma and would be happy to be featured, would you mind taking a minute out of your day to do this for us? We'd be incredibly grateful!
All you have to do is make a short video on your phone.
The more videos, the better.
So here's the main advice:
1) Hold phone camera in landscape mode. This is sideways, so it looks like a TV.
2) Have the strongest source of light shining in your face. This is to light you! Avoid filming with bright windows behind you.
3) Try to film somewhere quiet, and switch off any radios, music, etc.
As for the script, it should be spoken as clearly and naturally as possible:
"<Hi / Hello / Hey>,
<I'm / my name is / this is>
and I have Mesothelioma."
This is all you have to do..
If you can send your videos to firstname.lastname@example.org we would be very grateful. We are hoping to make something that will be sensitive yet powerful and educational.. raising awareness of mesothelioma.
All proceeds from our ball go straight to meso research as we're run by volunteers. We will be posting the final video in October to our website www.erasemeso.org and hopefully Mavis Nye will also share on her amazing open groups.
Obviously if people send in their videos they are agreeing to us using their footage.
We will try to use as many as possible.
We will be very grateful indeed, and handle very sensitively. Dan knows Paul's story very well and lost his father to cancer, so we know he will do an incredible job.
Thank you very much indeed x Please can you share this if you know someone who might be willing to help.
Gabriella Cilmi Lends her support!
We are over the moon that Guitar band DUO are playing our Erase Meso Ball Reception on October 4th!
This talented pair have been kind enough to donate their time pro-bono for mesothelioma research. We're in for an absolute treat!
See our Ball section for tix!
Ben Bruant and Will Cashel met and formed duo in 2011 while studying at the Royal Academy of Music in London.
Ben was born in Le Havre in France and studied at the renowned National Conservatory in Paris before moving to London. Will, born in Bath, England, won a scholarship to the Purcell School of Music at 14 before gaining a place at the Royal Northern College of Music.
Together the band has recorded three albums and performed its flamenco fusion of pop and classical tracks around the world – to audiences including British and European royalty and at events such as the Liverpool Philharmonic, BBC Good Food Festival and Smoked & Uncut. Its music has also featured on Scala Radio, the UK’s newest classical radio channel.
The band’s new album will be released this autumn.
Le Domestique interviewed Erase Meso founders Paul and Jill Cook last night.
The Podcast is now live and can be found on the Apple Podcast app or for Android users on Soundcloud as linked below: